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Call for Papers: ERPANET / DCC Workshop on the Long-term Curation and Preservation of Medical Databases

ERPANET / DCC Workshop on the Long-term Curation and Preservation of
Medical Databases

Calouste Gulbenkain Foundation
Lisbon, Portugal
October 13-14, 2005

Enabling access to and re-use of digital information is an integral part
of medical research and health-service provision and is essential for
enabling accountability. This workshop will explore the ways that
practitioners can support accessibility and reusability of databases over

This workshop provides an opportunity for information professionals,
medical practitioners, commercial developers, students, and researchers to
network with colleagues, learn about current developments, discuss their
own experiences, and to identify risks and challenges that are likely to
emerge. Presentations, panel discussions and breakout sessions will offer
participants cross-disciplinary perspectives on the long-term preservation
of medical databases.

This workshop will be held at the Gulbenkian Institute in Lisbon, Portugal
from October 13-14th, 2005. This event is co-sponsored by ERPANET, the
Gulbenkian Institute and the Digital Curation Centre.


In addition to the keynote address and selected invited papers, proposals
are being solicited for presentations and panels for this workshop on the
long-term curation and preservation of medical databases. We encourage
submissions from medical practitioners, academics, students, developers,
business analysts, managers, and others who are working with medical
databases or deal with information architecture.

Paper or panel proposals may be submitted as PDF via email to Joy Davidson
(british.editor@erpanet.org). Submissions must be received no later than
June 24, 2004 and should include the following information:

-Title of paper and presentation
-Author name(s)
-Address, telephone number, fax number, and e-mail address
-Brief description of how your contribution relates to the theme of this
-Abstract for the paper
-Short biographical sketch

Submissions should also designate a primary contact person along with
their contact details (phone number, and e-mail address) for responses.
Authors will receive confirmation of receipt of papers by email on June
24, 2005. All papers accepted will be published in the seminar
proceedings. Notification will be made for successful proposals by July
29th, 2005. Final versions of papers must be submitted by September 16th,
2005 for inclusion in the seminar proceedings.

Suggested topics include, but need not be limited to:

-Curating medical databases including:
       -genomic databases
       -patient records
       -medical imaging databases
       -clinical trials
       -health insurance databases
       -national health databases
-Formats for the long-term preservation of medical data
-Business models for establishing sustainable medical databases
-Roles and Responsibilities
-Privacy versus access
-Workflows for curating and preserving medical databases
-Research and metrics in developing preservable medical databases
-Training opportunities for health informatics
-Future directions and challenges

Abstracts of up to 1000 words may be submitted for presentations and
proposals for breakout sessions up to June 24th, 2005. Notification will
be made for successful proposals by July 29th, 2005. Final papers must be
submitted by September 16th, 2005 to be included in the workshop
proceedings as preprints. Presentation slides must be submitted no later
than October 1st, 2005.

Submit proposals to: british.editor@erpanet.org

Abstract Submission Deadline:           24 June, 2005
Notification of Acceptance:             29 July, 2005
Final Paper:                            16 September, 2005
Presentation slides:                    01 October, 2005

Niklaus Butikofer, Co-Director ERPANET
Alan Doyle, Science Programme Manager, Wellcome Trust
Mariella Guerico, Universit´┐Ż degli Studi di Urbino Carlo Bo
Hans Hofman, Nationaal Archief van Nederland
Seamus Ross, Associate Director DCC Services and Director, HATII, University
of Glasgow
Allan Sudlow, Programme Manager, Research Management Group, Medical Research

Joy Davidson
DCC Training Coordinator and ERPANET British Editor
Humanities Advanced Technology and Information Institute (HATII)
George Service House, 11 University Gardens,
University of Glasgow
Glasgow G12 8QJ
Tel: +44(0)141 330 8592
Fax: +44(0)141 330 3788